United States expert visits London hospital to examine baby Charlie Gard

Ebony Scott
July 17, 2017

They boy's parents are fighting an emotional legal battle with Britain's most famous children's hospital over whether trying an experimental treatment is in Charlie's best interest.

Baby Charlie has a disease called mitochondrial DNA depletion syndrome - which causes muscle weakness and brain damage.

Alasdair Seton-Marsden, who represents Charlie Gard's family to the press, complained that if they were rich instead of ordinary people their child would be free to receive treatment in the US. Hirano has offered to treat him with an experimental gene therapy he believes has a 10%...

The hospital gave Hirano, a doctor and professor at Columbia University Medical Center, an honorary contract, which gives him the same status as its own physicians.

The parents have fought in court for permission to take the child to the United States for treatment.

Specialists at Great Ormond Street hospital do not believe that Charlie has any chance of surviving his critical illness and believe his life-support should be turned off. After much debate in court on Friday over whether Charlie's parents will be present for this, the Judge announced that Yates will be allowed to attend.

Charlie's parents parent's Chris Gard and Connie Yates want Mr Justice Francis to rule that Charlie, who suffers from a rare genetic condition and has brain damage, should be allowed to undergo a therapy trial overseen by Dr Hirano in NY.

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In April, the judge ruled in favour of Great Ormond Street and said Charlie should be allowed to die with dignity.

After receiving the letter, Great Ormond Street asked the High Court for a new hearing on Charlie "in the light of claims concerning possible other treatments".

Rare-disease specialists at Bambino Gesu' are working with other worldwide experts to map out an experimental treatment protocol for Charlie, hospital chief Mariella Enoc said.

The parents have previously lost battles against the hospital in the High Court, Court of Appeal and Supreme Court in London over Charlie's treatment.

They have also failed to persuade European Court of Human Rights judges to intervene.

He is due to travel to London on Tuesday to examine Charlie.

Other reports by GizPress

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